8-14-11 Sunday   +9 months  

(Ghost writer Lisa at work- so any medical errors are hers!)

Status.  Weekends are slow around the hospital, and I am right on that same pace, just lying in bed and trying to get better.

 Events:  The nurses have been great about trying to let me sleep at night.  Since I have not had any fever they are willing to be a little looser on the “must take a patient’s vital signs every four hours” routine. That means I can usually get in six hours of uninterrupted sleep before they feel the need to poke and prod. 

  Breathing remains difficult, especially with any activity (and by activity I mean things like actually sitting up in bed.) I am on nasal oxygen.  

   At home I had worked hard to control my predisone-induced hyperglycemia with careful food intake and medicine.  Here I am unable to really control those variables, and my blood sugar has been all over the map.  So they are now paying very careful attention with lots of sticks to measure the levels, and actual insulin injections to bring the sugar levels down when need be.

   As you can imagine, when you come in to the hospital, they test you for everything.  First was the dreaded nasal swab (not fun)- that was negative for flu virus or anything else.  Unfortunately I am positive for the bacteria C. difficile – these days it’s often a hospital acquired infection that can occur with prolonged use of antibiotics.  I was positive when I was last here, so I was probably still positive when I came in.  They added a medicine (Flagyl) to my already prodigious pill supply.   It also means that anyone who comes into the room has to do the full dress- gown and gloves.  No mask at least.

Comments:   In a very coincidental and wonderful twist of fate – we received a letter from our donor on Friday.  This is our second later from her (we think it’s a she) – and we have sent two letters to her as well.   The donor remains anonymous until the one year anniversary of the transplant, then if both sides agree, they can exchange contact information.  We are so grateful to her.

   Tomorrow the long awaited bronchoscopy-  so they can figure out just what organism is inhabiting my lungs, the better to take aim.

   Have a great rest of your weekend.

Love,

Bruce

13 Responses to “”

  1. Ed Says:

    All our best to you and Lisa, Bruce. Hopiing and praying for a complete recovery for you…

  2. Marcia & Wilson Russell Says:

    Marcia and I are so sorry that you had to go back into the hospital, but this time it sounds like something that’s quite treatable. We’ll be thinking of you, keeping up with you daily, and hope that you’ll be home sooon. Wilson and Marcia

  3. Wally Says:

    Keep fighting Bruce -Mary’s and my prayers are with you.Are you on PCP prophylaxis? Other thought would be a steroid-responsive bronchiolitis obliterans from the GVH. .Hopefully bronch will sort it out.

  4. Karen Jaffe Says:

    Hi Bruce, we are sorry to hear that you’re back at JH and hopefully it will be a short stay as they figure out what new chemicals are needed to zap you.

    But you were right in the previous postings that it’s good to hear your virtual voice.

    Bob and Sara and I send love….

    Karen

  5. Roxanne K. Young Says:

    Oh, Bruce, I’m sorry you’re back at Hopkins and hope you will go home very soon! Thinking of you …

    Roxanne

  6. Howard Schoenholtz Says:

    Howard and Phyllis send our best to you and hope for a speedy recovery!

  7. dswedlow Says:

    Bruce,

    Ruthie and I are pulling for you. Good luck to you, man.

  8. wendy dan Says:

    lots of ongoing prayers… for a leap to health

  9. Gail Lehmann Says:

    Bruce,
    Mark and I are so sorry to hear you are back in the hospital. We empathize on what it takes to manage blood sugar (as Mark was diagnosed with diabetes two years ago). Luckily he is managing it with diet and exercise so far, but you have much more to deal with. Hang in there and get home soon.
    Love,
    Gail

  10. Donna Hill Howes Says:

    Bruce and Lisa,
    This setback is, no doubt, frustrating to you but we know those miracle meds will kick in and you’ll be out of there in no time. Sending you love, hugs and prayers that we’ll next be hearing from you back at home.
    XOXO
    Donna

  11. Michael & Greta Says:

    Sending much love and prayers your way.

  12. Leslie and Family Says:

    Thinking of Bruce each day and hoping he will be home soon with the family.
    Leslie and the Singmans

  13. Laurie Samuels Says:

    Bruce,

    Harry and I continue to send prayers of healing to you and much love and to all…… Laurie

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