6-07-10

Lisa’s folks are arriving this evening, and my Mom arrives tomorrow to celebrate Rachel’s 8th grade graduation on Thursday.  She attends a (K-8) school, and is looking forward to high school in September.  Rachel has been blossomed this year into a lovely young lady.  And in fact was one of only a few of her classmates to be chosen to give an address to the class – we’re looking forward to her remarks.

Status: 9.0/10.  Trips to Hopkins make for long days.  Not back home until 4PM.  Left early in the morning only to be confronted by a traffic accident on I-95.  Luckily we made it in time for both my lab work and bone marrow exam.  Lab numbers looked great – my white count and neutrophil counts are totally within normal range.  First glance at bone marrow looks good; we’ll get final word in a few days.

Events:  I cold-called the office of Escort Services at Hopkins, and the Director was gracious enough to come meet with Lisa and me to talk about our incidents in transporting patients.  He was completely understanding of our concerns (even called into the conversation his Patient Manager for transport, and put in a call to the person heading up radiology transport just to compete the loop).  He empathized and totally agreed with patients’ needs for calm and quiet movement through the hospital; had thought his troops understood that; and was going to undertake a re-training program for the staff.   And now we have the ear and the phone number of the head honcho.  As I used to say in my consulting days, “I want to be talking to the person who has the authority to move a weight-bearing wall.”

Comments:  The plan is continued exercise and weight gain.  With normal counts, I can walk outside without fear of all the junk in the air, and I plan to go a little farther each day.  Not setting my sights on the outcome I did when I started training for the Boston Marathon years ago, but I’m not too far removed from the shape I was in back then either – and I need to be in much better shape for the next phase of my treatment.  It’s just a matter of making it a priority and aiming for one step further.  I still have my indoor stationary bike, and my youngest brother Henry, the cyclist in the family, clued me into to some padded racing shorts that should help my fat-deprived derrière deal with the bike seat.

Love to you all,

-Bruce

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9 Responses to “”

  1. Cheryl Says:

    Looking good, Bruce. Continued support at this
    end! 🙂

  2. wendy Says:

    yes- we want NORMAL… keep up the good work..and if there is anyone I know who can be committed and accomplish a goal..it would be you…go get them Bruce

  3. Barbara McKee Says:

    Such Good News! You and your entire family are so amazing!

  4. Donna Hill Howes Says:

    I’m with Wendy…normal never looked so good!! And to think that we strive so hard for much of our lives to break out of the “normal” pack……who knew?!
    Big congratulations to Rachel….seems like yesterday when she was born….sigh….sunrise, sunset, swiftly fly the years…..
    Love to you all.
    Donna

  5. Hopie Says:

    Can’t wait, have been packed for a week! You know me!

  6. Sheryl Stolberg Says:

    wow, bruce, this is a great report. i’m so happy to read it. Rachel’s graduation, normal white counts, you on the stationary bike…So much to be thankful for.

  7. Karen Jaffe Says:

    Bruce, in case your brother didn’t put one on, in addition to the padded bicycle pants, you can add a padded (gel) seat on top of the hard one that comes with your bike. As I have become a “mature” biker this is standard gear for me

    xoxoKaren

  8. Judi Golding-Baker Says:

    What great news!!!! Normal is the best…Also you are the best…talking to the “patient transport-weight-bearing guy who has the authority to move a wall”…gosh, I love the fact that you did that…you threw the proverbial stone in water and those ripples will spread out…and make a difference.

    Much love to you and Lisa

    Judi

  9. Judi Golding-Baker Says:

    P.S. Big, big congrats to Rachel (go Rachel go!)…much love to Ethan…and kisses and hugs to your Mom, Uncle Warren and Marilyn…here’s to a joyous graduation day.

    Love you
    Judi

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