9-7-10 Tuesday

Status: 8.75/10.  Feeling better each day.  

Events:  Lots of traffic up to Hopkins this morning, school’s back in session and everyone is home from the summer.  White cells and neutrophils are both in the normal range (I could tell you that just by the way I feel).  Didn’t need any platelets last Friday because they were holding up so well, and the same was true today.  Nice to be told, “You’re doing fine, go home.”  Don’t have to check back in until Friday.

Comments:  Now that my counts have been good for a week, we’re discontinuing my IV antibiotics.  That’s a relief since infusing them is an affair.  The pressured ball that contains the antibiotic has to be kept in the refrigerator, but taken out a few hours beforehand.  After washing hands and putting on gloves, the port on my Hickman catheter has to be cleaned with alcohol, flushed sterilely with saline, and the antibiotic tubing connected.  After the antibiotic is infused (about an hour) the antibiotic flow is clipped off, the catheter tip swabbed with alcohol, and the line flushed with saline and then heparin to prevent clotting.  This sequence occurs at 8 AM, 3 PM, and 10 PM, and has been going on for a month.  Good to have one less procedure to go through.  Looking forward to a quiet and productive week.

   Love,  

-Bruce

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13 Responses to “”

  1. Art Ulene Says:

    Bruce…. I am delighted to see/hear about your progress. Keep it up, and know that you are on my mind. Art

  2. wendy Says:

    get a nurse to do all that… really- get a nurse…. it should be a home health coverage.. I’d think… the more that you get served the better you ARE able to heal thyself and serve others…

    glad that you are finally starting to feel better.. eat pray love… that’s a good idea… EAT PRAY and LOVE.. could make a good book and while the title is already used..you could give it a sub title.. Bruce Dan’s life and friends and family during treatment for aml… it’s all about eat prayer and love..

    think it would sell…. love wendy

  3. Andrea Tuttle Says:

    Congrats!!. I bet you already have plans for all the free time you will gain. Take it easy, as said above, eat, pray, love and relax! Enjoy with gratitude all those simple pleasures.

  4. Donna Hill Howes Says:

    Thrilled to “feel” your strength, Bruce….it’s a great joy to all who love you.
    XO Donna

  5. Henry Miller Says:

    Your sense of well-being comes right through the computer screen! It’s so good to see! Enjoy and revel in it!

    Henry

  6. Jackie J Says:

    Great to hear you are feeling better and stronger. Time to enjoy the new year with your family.
    Best,
    Jackie

  7. Wally Schlech Says:

    Great news! – expecting 9/10 – 10/10 any day now!

  8. Judie Davidson Says:

    Glad you are doing so well. Thanks for keeping the blog going.

  9. Michael & Greta Says:

    Super news! Not a day goes by that we’re not thinking about you! XO

  10. Roxanne K. Young Says:

    Dear Bruce:

    I’ve said it before and I’ll say it again: You go, Guy!

    Fondly,

    Roxanne

  11. joel steinberg Says:

    Great progress, Bruce. This lifts our spirits. Joel and Margaret S.

  12. Peggie Neill Says:

    Bruce –
    This is way past terrific – and just rejuvenates all of us to keep bombarding you and Lisa with love, good thoughts and prayers.
    Best,

    Peggie

  13. Len and Lisa Says:

    Great news Bruce! Keep up the good work and we are so happy to see things progressing as they should and “relatively” comfortably. Nice to hear also that Rachel is having an easy adjustment-not sure to which school but that’s secondary.
    Bryan is off to Tulane for 5 weeks already-we miss him but so far so good-he seems to be mixing the academics, the extra-curricular and the social very well-we are proud and happy parents. Alexa is driving (careful on the roads!) and enjoying being a junior-if that’s possible…
    All our love and good thoughts.
    Happy New Year.
    L + L

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