12-30-10 Thursday +64
Status: Looks like I’m in a stable slump. Sort of like a .300 hitter suddenly batting .200. As we resolve one problem, another one seems to pop up. Lisa refers to this under the official medical terminology as the “Whack-a-Mole” syndrome.
Events: A brief summary: the search for the cause of my dysuria (pain and burning on urination) has shown up no bacterial urinary infection, no BK virus, no adenovirus, no herpes virus. So the cause is obscure. We tried pyridium (an oral pill that acts like a local bladder numbing agent). Didn’t seem to help and caused nausea and vomiting. So we stopped it – then the staff tells us they really haven’t seen it work either.
Cytomegalovirus cultures are negative times two, so we’ll just continue the anti-viral Valcyte for just another week, not a moment too soon since it’s probably the reason my counts are low. In order to help my neutrophils come back, I’m getting an injection every other day of a hormone-like factor that stimulates those cells. It’s given like an insulin shot.
My graft vs. host disease continues to progress, and seems worse on the parts of my skin that’s been exposed to the sun. One of the nurses said she’d seen a patient that was spared in the pattern of a bikini. I’ve gotten the most of the graft vs. leukemia effect, so they started a 12-day course of steroids to halt the progression. The dose is what we in the medical profession refer to as “industrial strength,” and it comes with its own hazard since it’s such a potent immune-suppressant. It will certainly make me feel better and increase my appetite.
Comments: The kids are coming up for the weekend – good for them and good for me.
I wish everyone a wonderful New Years Eve, and a Happy and Healthy New Year. I’m looking to join you in that. We’ll update you on Monday.