1-7-11    Friday   Day +72

Status:  Got the green light today, 72 days after my transplant, that we can go home!  We’ll pack up tonight and be back in Bethesda tomorrow.  Still not disconnected from the mothership, I’ll be back Monday for a repeat bone marrow to get enough marrow so as my IPOP attending says, “I can look you in the eye and say you’re all right.”

  Also scheduled for a potential repeat lumbar puncture on Tuesday because the previous one on Wednesday was deemed, “traumatic.”  Simply put, in putting the spinal needle in, they punctured a vein, which led to some bleeding into the spinal fluid contaminating it with blood.  Spinal fluid is normally clear, colorless, and has no cells, but my sample now has red blood cells, white cells, and plasma in it, messing up their delicate tests.  I believe the only place they haven’t stuck me is in my eye.

Events:   Lab results and diminution of graft vs. host reaction on tapering steroids were deciding factors in letting me be an hour away.  

 Comments:   While we did have to deal with numerous “Whack-a-moles” during the last 10 weeks, we’re grateful we never had a fever and having to deal with those complications.  Still issues to work through as we start discontinuing certain drugs and watch my progress, but we’re moving forward and hoping we can put his episode behind us.  The most dangerous period is the first 100 days, so we’re not out of the woods, but we see daylight ahead.

  It has been of so much consolation having you with me on this journey, perhaps impossible for me to have made it to this point without you.  How does one say, “Words cannot express?”

  We’ll take joy in returning home, rest, and report on Monday’s appointment.   Have a peaceful and loving weekend.

-Bruce

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25 Responses to “”

  1. Judy and Ken Says:

    Words can express how we feel about your amazing progress!. You have always excelled and continue to excel in everything you do.
    HAPPY HOMECOMING!!!!
    Judy and Ken

  2. Blaine Says:

    Words can’t express how happy I am that you’re going home. Congratulations!

  3. judy moss Says:

    We wish we could properly express how happpy we are that you are going home. You have come so far in this journey and can now see the light at the end of the tunnel. Enjoy your time with your family. You continue to stay in our thoughts and prayers for a complete recovery. We hope you will be writing a book….you are an amazing writer and we have so enjoyed reading your blogs.
    Take care, Bruce.
    Love, Judy and Larry

  4. wendy Says:

    what a nice present for your mother’s birthdayHer numero uno son is home. and 2/3 of the way through the critical period. Know it will all be just great and do hope you get to meet your donor to compare notes and show him or her what him or her what a gift you are.

  5. Hope Says:

    Yippee and Hip, Hip, Hooray, Better in Bethesda, Know you will love being home, sweet home. Know they miss you there. How exciting for the entire Bruce’s team all over the world. And your biggest boosters right here in Memphis, with all of your loving parents and relatives and friends. Love you 4 , Mom

  6. wendy Says:

    I bet the Arizona cutback on transplants and the governor’s comments infuriate you. Maybe your can speak to her about your success. She needs to better understand the benefits versus financial risk. A life is worth saving if transplant is an option. Teach dear brother Teach!!!!!

  7. Barbara McKee Says:

    You are one amazing person surrounded by one amazing family. Your blog has been phenomenal for everyone and I would imagine kept you going as well so I hope it continues for some time – at least until day +100! Enjoy your home!

  8. Jill O'Mahony Stewart Says:

    Homeward bound!

  9. Amy and Blake Golding Says:

    Dear Bruce,

    While this perilious journey was unxpected, the many pathways unclear, the vast number of potentially different results uncertain, we always knew you would return home. Your strength through this life-changing event has and will continue to serve as an inspiration for all of us. You have fought this battle valiantly and without question, did not ask why once, only how to overcome. Keep on keeping on. We continue to keep you and your family in our prayers.

    Love,

    Amy and Blake

  10. Kathy Shands Says:

    HOORAY!!! Happy Homecoming.
    We are so glad you are doing so well.
    Love, Kathy & Joe

  11. Sharon McDonnell Says:

    Is it just me or what? I read this post and felt such elation i started to cry. Then my daughter tries to comfort me and finds out I am leaking with joy and relief and a tiny sense of what you all have been though. She has learned the middle aged version of mom is a wacky emotional whole hearted creature that can go from tears to laughter in the same breath.
    In your message I got a taste of the gratitude that you often mention and it must sometimes almost swamp you and then spill over. I am so pleased you are going home and I wish for you 1,000,0000 mundane silly everyday experiences that come with real life and the quotidian.
    Happy new Year….Sharon and Gib

  12. Jackie Says:

    Amazing news, Bruce.
    Dorothy and Toto were right–there’s no place like home.
    Best
    Jackie

  13. Warren Says:

    Great news. Enjopy your home and family. Let it permanent.

  14. The Conrad's Says:

    Bruce,

    We are so happy to hear that you are going home!
    You are always in our thoughts and prayers.
    Joe, Lynette, Manny & Raphy

  15. Catherine O'Brien Says:

    So happy for you! What a ride.
    Love,
    Catherine

  16. Lynn Oliver Says:

    This is one of the best messages I’ve ever gotten. Don’t say that about your eye though, they might find a way. Welcome home! Love, Lynn

  17. Carolyn & Patrick Hyde Says:

    Bruce,

    We’re so happy to hear that you’re home! You’re an incredible “warrior” as is Lisa. What a beautiful message for all of us to read.

    Carolyn & Patrick

  18. Aileen Says:

    GREAT news! Home at last!

  19. Laurie Samuels Says:

    I was THRILLED when I read your blog this morning…. knowing you were home and slept in your own bed last night! Ahhhhhhh, nothing better. Rest, feel good, eat well. Continued good wishes for strength and healing, wrapped in a package filled with love…. from Harry and Laurie

  20. Donna Hill Howes Says:

    Yippeeeeeee!
    Thrilled and thankful beyond words for your recovery.
    God has blessed you richly…..go love that sweet family of yours.
    Donna
    XO

  21. Ken Zwick Says:

    That’s wonderful news, Bruce and Lisa. We’re so happy to know you’re home.

    Ruth & Ken

  22. joel steinberg Says:

    We are so glad you finally get to go home. We hope your course remains smooth from now on. Margaret and Joel S.

  23. Peggie Neill Says:

    Bruce and Lisa –
    You’ve reached the next benchmark, and all of us are standing and cheering. You also have a few thousand virtual hugs (after alcohol handgels and all that…)

    Love you, and so glad to “see” you at home – can you post pix on this blog? We’d love to see you and Lisa and kids all piled up on the sofa or wherever.

    We love you, and pray for you every night.

    Love,
    Peggs

  24. Jeff Levine Says:

    Bruce:
    Your courage and clinical insights are an inspiration! What a joy for you to be home with your family. The words “Happy New Year” were never more appropriate or heart felt. Thinking of you, Lisa and the kids. Our love, Jeff and Susan.

  25. jeanne schwartz wurzburg Says:

    Wonderful news…WELCOME HOME!!!
    Hope 2011 will be the best year ever for you & your family- full of healthiness & happiness & all the blessings you so deserve!
    Love, Jeanne & Warren

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