1-10-11 Monday Day +75

Status: Numbers are stable, and tapering off steroids.  Things are going well enough that I’m beginning the transition process from IPOP to my lead oncologist at Hopkins for outpatient follow up.

Events:  Had my bone marrow this morning with some Versed and Fentanyl (conscious sedation).  I’m told I was asking the IPOP attending doing the biopsy about his medical training. I, of course, have no recollection of this.  If things hold stable they may release me from IHOP the end of this week or beginning of the next.  Most patients would then be sent back to their referring oncologist, but in my case it’s the attending oncologist at Hopkins, and who first began all this with me in April.  Postponed my lumbar puncture until sometime next week.

Comments:  Leaving IPOP will be traumatic.  It’s been our security blanket, being closely watched for big and small problems alike, all with an extraordinarily caring and professional attitude.  But sooner or later I’ll have to cut the apron strings.  We’ll start peeling off drugs little by little, and give my body a chance to heal on its own, all the while watching for recurrence of graft vs. host disease or infection.  Although I’m looking forward to seeing all our friends, we have to be unbelievably careful about exposure to colds and flu.  Next visit Thursday, then perhaps on a twice per week schedule.  As my oncologist says, “Step by step.”

  My Mom’s 86th birthday is tomorrow – Happy Birthday, Mom!

  Hope you’ve been missed by the snow. We’ll share our visit on Thursday.

Love,

-Bruce

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9 Responses to “”

  1. Marcia & Wilson Russell Says:

    Great news, Bruce. The Russell family has been thinking of you & your family. Here is to a good 2011!

  2. joel steinberg Says:

    Yay, Bruce. We are elated. Margaret and Joel S.

  3. Judy and Lewis Lefkowitz Says:

    Happy Birthday to your Mom, right now probably the happiest woman in the world.

  4. Hope Says:

    Wasn’t missed by the snow, got 4 inches overnite, And of course no snow removal here. Didn’t go out and tomorrow expecting ice. everything shut down. Having all the invitations to take me to lunch are getting a Snow check instead of Rain check. I AM so happy.

  5. Sheryl Stolberg Says:

    Happy Birthday to Hope, who has been in my thoughts as you have, Bruce.
    So glad you are home and transitioning out of IPOP.
    Much love,
    Sheryl

  6. wendy Says:

    Julie once said to me, “i don’t know how you were able to let me travel the world backpacking for a year”. I said- I trusted that the universe would take care of you and that ‘s what faith is all about..it’s takes a leap.

    Here’s to your leap and all will be well.

  7. Peggie Neill Says:

    Bruce-
    What a milestone – all hearts uplifted!
    Step by step, brick by brick, friend by friend – we are with you, every step of the (snow covered) way. And Happy Birthday to Mom Dan, may someone else shovel the snow!
    Best,
    Peggie

  8. Donna Hill Howes Says:

    Huge smiles and feelings of thankfulness for all who have taken such remarkably great care of you and Lisa through this journey back to good health. Your spirit carried us all….so happy for this continued progress. Love to you, Donna

  9. Art Ulene Says:

    Bruce…. Needless to say, I am thrilled to hear this wonderful news. Each day I have shared your messages with Priscilla and we have reflected on our fragile relationship with life itself. Your willingness to share your story has kept us mindful of the fact that none of us has a guarantee on health or on life itself, and we must not take either for granted.

    That message was brought home to us in spectacular fashion 4 days ago, when–on the road between Timbuktu and Douenza, Mali–our driver lost control of the car and we went through a 360-degree rollover. I fractured a clavicle…. Priscilla has at the very least a post-concussion syndrome, and more likely a cerebrospinal fluid leak that is causing her to have very severe headaches whenever she sits up. We are banged up but grateful to be alive, and we expect to recover fully with a few weeks of rest and TLC.

    We take our experience–and yours–as a reminder that each day is a gift…. that nobody promised it would be easy…. and that there is more work for us to do on behalf of those less fortunate than us. We were staggered by the poverty and deprivation we witnessed in Mali…. and by the fact that people did not seem to be feeling sorry for themselves.

    We rejoice in your good news! Art

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