8-14-11 Sunday +9 months
(Ghost writer Lisa at work- so any medical errors are hers!)
Status. Weekends are slow around the hospital, and I am right on that same pace, just lying in bed and trying to get better.
Events: The nurses have been great about trying to let me sleep at night. Since I have not had any fever they are willing to be a little looser on the “must take a patient’s vital signs every four hours” routine. That means I can usually get in six hours of uninterrupted sleep before they feel the need to poke and prod.
Breathing remains difficult, especially with any activity (and by activity I mean things like actually sitting up in bed.) I am on nasal oxygen.
At home I had worked hard to control my predisone-induced hyperglycemia with careful food intake and medicine. Here I am unable to really control those variables, and my blood sugar has been all over the map. So they are now paying very careful attention with lots of sticks to measure the levels, and actual insulin injections to bring the sugar levels down when need be.
As you can imagine, when you come in to the hospital, they test you for everything. First was the dreaded nasal swab (not fun)- that was negative for flu virus or anything else. Unfortunately I am positive for the bacteria C. difficile – these days it’s often a hospital acquired infection that can occur with prolonged use of antibiotics. I was positive when I was last here, so I was probably still positive when I came in. They added a medicine (Flagyl) to my already prodigious pill supply. It also means that anyone who comes into the room has to do the full dress- gown and gloves. No mask at least.
Comments: In a very coincidental and wonderful twist of fate – we received a letter from our donor on Friday. This is our second later from her (we think it’s a she) – and we have sent two letters to her as well. The donor remains anonymous until the one year anniversary of the transplant, then if both sides agree, they can exchange contact information. We are so grateful to her.
Tomorrow the long awaited bronchoscopy- so they can figure out just what organism is inhabiting my lungs, the better to take aim.
Have a great rest of your weekend.