8-22-11 Monday +9 months

(From Lisa)

Status: All of the cultures are still negative for infection – viral, fungal or bacterial. The best guess is that Bruce has one of a number of inflammatory lung diseases that can result even this long after bone marrow transplant, especially in patients with Chronic GVHD, which he has.

Events: One of our brilliant (and I do mean brilliant) pulmonary doctors decided to try a regimen of very high dose steroids to try to fight the lung inflammation. Bruce is now on 500 mg a day for at least three days. Today’s chest x-ray did seem to show slight improvement, and Bruce has been stable on his ventilator settings for the past 24 hours or so.

Given that, doctors decided to switch the ventilator to what is called “pressure support mode”. That was a test really to see if Bruce could breathe on his own – with oxygen support from the machine. He was able to do that for about two hours before tiring out.

Comments: We’re really just taking it a day at a time. The nurses who are caring for Bruce are amazing and they help us stay centered as well. So do all of you. The comments, concern and good wishes are uplifting. Thank you all so much.

Love,

Bruce (and Lisa)

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23 Responses to “”

  1. Wendi Says:

    Lisa,
    Thank you so much for the update. I hope that slight improvement becomes a huge improvement shortly! We are comforted to know that Bruce is getting the best possible care, and especially grateful that Bruce has you leading his team!
    All the best,
    Wendi

  2. Ed Baker Says:

    Thanks Lisa…hope the kids are OK too.

  3. Barbara McKee Says:

    Thanks Lisa for the update. You have so much support and the excellent care from all of the best physicians. There seems to be some encouragement so go with that for the day and accept all of the prayers and wishes from your many friends and family.
    Barbara McKee

  4. Cliff Karchmer Says:

    Lisa, this really is good and welcome news. Please keep it coming.

  5. Judie Davidson Says:

    Lisa, thank you for the update. Thinking a lot about you and Bruce.
    Judie

  6. Eileen Breslin Says:

    Lisa and Bruce, you remain in our thoughts and prayers…..we so appreciate the updates and know even if we are not there physically, we are sending our energy your way…love Eileen & Bill

  7. Karen Kosiba Edwards Says:

    Lisa,
    Sending positive energy up 95N and appreciate the update!
    Karen

  8. Ray Dan Says:

    Lisa, please know that Barbie and I have you, Bruce, and the kids on our minds constantly. I am glad Terry and Aunt Hope and Uncle Merrill are with you. Hope and you are great comfort givers. Love, Ray

  9. Amy and Blake Golding Says:

    This is hopeful news. Well, we start with 2 hours, and tomorrow we hopefully go to 2.5 hours and the next day, 3.0 hours — Just one step at a time — sending our prayers and good thoughts – you can pull through this.

    Love, Amy and Blake

  10. judy moss Says:

    Thank you so much for taking the time to update everyone, Lisa. We are all thinking of and praying for Bruce, you, your kids and your family. We continue to hope that he can fight through this. As they are all saying….one minute at a time.
    Love, Judy and Larry

  11. Aileen Pincus Says:

    It’s a good start…here’s to more good news to come. I hope you can get a bit of rest yourself, Love, Aileen

  12. jpsf Says:

    Our prayers and positive thoughts continue….

    Judy and Ken

  13. Judy and Lewis Lefkowitz Says:

    A “positive.” Bruce, we are glad you’ve had time to build up your strength and reserves over these long months since your transplant. We’re pulling for you.

  14. Peggie Neill Says:

    Lisa-
    All of us are so profoundly grateful for your updates. You have so much on your plate which only makes the rest of us redouble our prayers. Thank you for your effort to keep up this blog, even when you have much else to carry. All of us are keeping Bruce, you, kids and family in our prayers.
    Love,
    Peggie

  15. joel steinberg Says:

    We keep hoping and praying for you. Joel and Margaret S.

  16. Johnny De Philo Says:

    We’re keeping all of you in our hearts and thank you for taking the time to send news from the front. One positive step at a time. This is good news and is cherished. A BiG THANKS to you, Lisa, and of course the Doctors and Nurses and all who can be there at your side, the kids, and at Bruce’s side. kisses johnny and lake

  17. Robin Miller Says:

    You are all in my thoughts and prayers. Big healing hugs to all of you! Robin

  18. Karen Jaffe Says:

    If wishes and prayers were dollar bills you would be billionaires

    xxx Karen

  19. mike magee Says:

    Dear Lisa and Bruce-

    Just tuned back in – and am absorbing the news. Trish always says it’s impossible to plan forward. Life throws so many twists and turns. And some of them are not easy – even at times unbearable. And yet people do bear them, do survive them, do thrive inspite of them. Of the list of things you have in your favor – Bruce’s incredible knowledge and experience in Medicine, Hopkins doctors and nurses, supportive friends who wish you well – the most important and inspirational, is that you have each other. Bruce is blessed to have you at his side, Lisa. You are his best medicine. Here’s a wish and a prayer for a quick turn around, allowing you to look back some time from now and say, “That was tough, but we made it through it together.”

    God bless you!

    Mike

  20. pjvn Says:

    Thanks so much for the update. Holding you buys in my thoughts and prayers. Sending a constant stream of healing thoughts for Bruce.

    xoxo,
    Paula

  21. winnie Says:

    keep in there fighting
    my prayers are there for you and lisa
    love winnie

  22. Donna Hill Howes Says:

    Our love and prayers remain with you each and every day. You are strong and in the very best of hands…..please know that you are so supported from every quadrant of this land….big hugs to you both, Lisa and Bruce….your strength amazes us all….
    Love, Donna, Taylor and Ross
    XOXO

  23. Chris Wood Says:

    Lisa, I love you dear friend. My prayers are with you and Bruce and your children. Chris

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